Nephrologist

I took Mason to his nephrologist today for a check-up. He is doing great! We have been in remission since December. This is the longest we have ever gone. He used to relapse at least at least every two months or so. I count my blessings daily that he is staying so healthy. I am almost scared to type this, because I don't want to jinx it. The doctor decided to keep him on all the medications he has been taking. I have mixed feelings about this. Is the medicine just a band-aide keeping him in remission? When we go off the medicines, or start weening him off will he relapse? We can't keep him on them forever. The medicines taken over a long period of time can cause lots of damage to his kidneys of all things along with other long term complications. What is considered a long period of time? We have already been taking all this crap for three years. For now I am just going to be thankful that Mason is beginning to look like himself again. He has almost lost all the weight the prednisone made him gain. He is on such a low dose of that, you can hardly tell. It is crazy having such an active athletic boy that seems perfectly normal, but I always have that nagging little reminder that it can change in an instant. The doctor told me today they have a camp for kidney kids this summer and wants Mason to go. I wonder if he would like it? They will have a range of kids with different kidney conditions. I don't know how he would react to that. I am letting him decide what he wants to do. He is concerned he will miss football practice or a baseball tournament. Something tells me he won't be going.