YIPPEE

Today Mason had a visit with his nephrologist. He has stayed in remission for almost a year and 1/2. We have maintained the same doses on his medications to keep him from relapsing. Today we decided to go prednisone free. I am so happy!! He has only been taking 5mg every other day, but I can still tell a difference in his personality on the days he takes it and the days he doesn't. If he continues to pee protien free urine we will try and take away another medication. Our ultimate goal is to be medicine free. If he can handle the reduction of the medicines this may mean he no longer has nephrotic syndrome. This would be the answer to many prayers!!

We're Home

We got a little surprise this morning. When the doctor came in and saw us he was pleased with Mason's labs. Mason had to drink a certain amount of liquid yesterday and he did. The doctor was so pleased he said we could go home. We checked out about 1:00. When we got into the car Mason was very tired. He had me worried, he seemed worse than he did when we were in the hospital. I think it all just hit him at once. When we got home I took Tanner to his football game and Brad stayed home with Mason. I told Mason he had to take a nap or he couldn't watch the UT football game tonight. He has been sleeping a couple of hours now. He has no restrictions and might get to go back to school on Monday. Thanks to everyone for their thoughts and prayers. It is reassuring to know we have such nice people in our lives.

Hospital

Last night Mason was admitted to the hospital. I went to the pediatrician again yesterday because Mason was still running a fever and he was complaining of his mouth hurting. The doctor said it was herpes. What the ......? I asked him how he got that and he said it was very common and kids pass it all the time. Who knew? When I got home I looked on the internet and it said you can take antiviral medication for this. I called his nephrologists and told them what was going on and they told me to take him to the ER so he could be admitted for IV antiviral meds. We got to the ER at 6:30 and didn't get up to a room until 10:30. They didn't start the IV until around 1:30 and it was so loud we couldn't sleep. Then they kept coming in at least every hour for one thing or another. The labs showed his BUN level was a little elevated, that is his kidney function. He is still not spilling protein. His blood showed some new bands (I have never heard of bands) He said that you are suppose to have 0 bands and he has 6. This means his body is fighting an infection. Really??!! The worst part is they have him in isolation so he feels like he is in jail. He is tired and very crabby. Nothing is good enough at this moment. He is very sad he is missing Halloween. He had plans for a friend to ride the bus home and they were going trick or treating by themselves. He has a very important football game tomorrow. He has two baseball games on Sunday. He is very disappointed to not be able to participate. The doctor said the earliest we can get out is this weekend, perhaps tomorrow.

Still home

This is day four being home with Mason. I am a little bored. I should be using this time wisely. I have bathrooms that need to be cleaned and floors that need to be mopped. Instead I am surfing the Internet and finding funny videos to post on my blog. Watch the video I posted below.

I thought Mason was better this morning. His fever was only 100, but I can't get him to eat. He says his stomach hurts and he has a sore on the tip of his tongue. His doctor wanted me to bring him back in this morning if he wasn't any better. I didn't take him, but I just called them and they want me to bring him in at 2. Will this ever end??

I need to take Tanner to the allergy doctor for his shots today. His doctor is in the same building as our pediatrician. I think I might check him out of school a little early, so I only have to make one trip. Is that bad? The poor kid hasn't had a chance to carve his pumpkin yet and he has football practice tonight. If I pick him up and get the allergy doctor out of the way, he will have time to carve his pumpkin, do homework, eat dinner, go to practice , and still get to bed on time.

Still Sick

Mason ran a fever all day. It went down to 100 while he was on Tylenol, but as soon as it started wearing off the fever was high again. We went to the doctor this morning. He thinks it is just a virus. He checked his urine and the results were good. He is still not showing any protien in his urine. This is the sickest he as been in a while. If he can get through this with out spilling protien maybe he has outgrown the nephrotic syndrome. We go and see the nephrologist in November. Hopefully he will start weaning Mason off these medicines. I am probably being too hopeful. Our doctor wants me to call him tomorrow and update him. Tonight Mason't fever went back up to 103, so I gave him another tylenol. More than an hour later the fever was still at 102. Of course this caused me to to get on the computer and research what to do with a fever. Nothing really helped because Mason isn't a normal kid. All these medicines he takes weaken his immune system, so I don't know why I was wasting my time. I just worry about him so much. He is sleeping soundly right now, so I should just relax. Maybe he will wake up in the morning and be fever free.

Sick Kid

Yesterday Tanner had two baseball games. He did much better. He didn't throw any fits. He did cry when he struck out, but he recovered very quickly.

While Tanner and I were at his game, Mason was at home with Brad. He had baseball practice that afternoon. He kept calling me telling me he didn't feel good, could he miss practice. He said his jaw hurt and he thought it was broken. I thought he was faking it. I let him miss practice but told him he needed to lay in bed and not go out and play. When we got home from Tanner's game Mason had a fever of 99. I still didn't believe that he felt bad. He took a bath and then said he felt much better. Tanner had a birthday party to go to, so while he was at the party Mason and I went to see High School Musical. While we were at the movies Mason kept saying he was cold and started looking terrible. By the time we got home he had a fever of 103. (I am such a great mom. I thought he was faking it all day.) He asked to take another bath. When he was ready to get out he yelled for me and told me he couldn't get out by himself. I took his temp. again and it said 105. I almost had a heart attack. I took it again and it went down to 103 again and then it kept falling getting down to 100. I guess the medicine finally kicked in. I checked him out through out the night. It stayed around 101. Of course I worried all night wondering if this was going to make him relapse again. We have almost gone one year with out relapsing. I checked his urine first thing this morning and he is still negative. I am sure I will be taking him to the doctor today.